Showing posts with label advocacy. Show all posts
Showing posts with label advocacy. Show all posts

Saturday, October 3, 2009

Planet Cancer Roadshow is coming to Pittsburgh!



If anyone reading this blog works at UPMC, West Penn or Children's Hospital, its your lucky day! Staff and Crew from Plant Cancer will be in town this week to talk about young adult cancer and what we can do about it, and theyre coming to you. More info below from the Planet Cancer website:

Planet Cancer is taking our young adult cancer Advocacy Roadshow on the road! Starting in fall 2009, we’re hitting cancer centers across the country to spread the word about young adults and cancer.

Planet Cancer staff - alongside our amazing doctor friends who’ve already drunk the young adult Kool-Aid - will be talking young adult cancer survival rates, clinical trial stats, psychosocial dilemmas, and what your docs can do about it. If we’re headed to your institution, please tell your medical care providers to come see the Planet Cancer presentation at their center's Grand Rounds.

What to expect at the Planet Cancer Roadshow:

-The latest in young adult cancer research
-Inside the world of a young adult with cancer
-Why our unique needs aren't being met
-What docs, hospitals and care teams can do about it
-Resources and the future of young adult oncology



Planet Cancer will be in town Wednesday & Thursday, so talk to your docs and make sure they're in attendance!

Friday, May 1, 2009

Building Resources In Cancer Knowledge & Services

or BRICKS for short.

My name is Charissa, a lot of you know that already, but for those of you who dont allow me to introduce myself. Im a 33 year old mother, women's healthcare worker, sometimes photographer and music maker, and perhaps most importantly- a widow. My husband Rick passed away on March 17, 2009 of Hodgkin's Lymphoma at the tender age of 31.

In the 3 short years I spent with Rick I learned a lot about cancer, the injustices of our healthcare system, and how few resources are dedicated to addressing the basic needs (and ultimately the survival rates) of young adults diagnosed with cancer in their 20s and 30s. After Rick's passing I knew that we had worked too hard for too long for me to keep all the little bits of knowledge I had learned to myself. My desire to help young adults with cancer did not end when Rick's life did, but rather was fueled by it- I knew that now more than ever I needed to dedicate the exhausted and frazzled remains of myself to fighting this fight, and that by doing so I could make something positive come out of this experience. One key lesson that I learned from my husband was that every experience, even the negative ones, had value. They can all teach you something if you let them. This is to be no exception.

And so, over the last 6 weeks and 3 days, BRICKS was formed.

The name probably matters only to those of us who knew Rick, and maybe even fewer of us who were privy to the stories of his childhood. He liked to tell a story of how one summer he spent the days moving roughly a ton of bricks from one side of his parents yard to the other. It seemed like a tedious task, laboring in the sun, brick by brick, back and forth. He could see no real reason for the task, yet still felt accomplished at its completion. Maybe thats the lesson for those of us who are faced with a cancer diagnosis- there may be no reason why, but the dedication to seeing it through is the ultimate accomplishment. Maybe it is only later that we realize the lesson we were to learn.

So, now begins my task- brick by brick building a structure to support young adults in my community. The details of my goals and objectives will be discussed over the next several weeks, and I hope that you will stick with me. I look forward to the great potential in this effort, and know that through my actions I am making my husband immensely proud. There is so much work to do, and I only hope to rise to the challenge.