Showing posts with label BRICKS. Show all posts
Showing posts with label BRICKS. Show all posts

Sunday, May 30, 2010

Testify!



Hey! You! Have you received or read a copy of the BRICKS for Young Adults: Cancer Awareness & Resource Guide? We wanna know what you think of it! Was there a resource in the back that you didnt know about, and have since utilized? Was there a story that made you say "Wow, Im not the only one who feels that way!" Was there something we missed that just HAS to be included in the next one?

If so, shoot us an email at brickspgh at gmail dot com, subject line "TESTIFY!" Your input means so much to us, and we want to make sure we are meeting the needs of those this book was made for. We'd love to be able to share your opinions in future grant writing or reporting, or with people who interview us about the booklet. Please also include a line in your email saying whether or not we may reference your comments, which we would always do anonymously.

Please please please get in touch and let us know what you think, we cant wait to hear from you!

Tuesday, May 11, 2010

BRICKS goes to the Roller Derby!




BRICKS for Young Adults has been invited by the Steel City Derby Demons to table and hand out booklets at this saturday's game.

May 15
Steel Hurtin’ vs. Suburbia Roller Girls Brawl Stars (Westchester County, NY)
and the B-Unit vs Suburbia Roller Girls Backyard Bullies

7pm at
Romp N Roll
1661 E. Sutter Rd
Glenshaw, PA 15116
Phone 412-486-4117

Tickets are $10 in advance and can be bought here

Thursday, April 22, 2010

BRICKS at Gilda's



On Tuesday, April 27th Ive been invited to speak to and hang out with the young adult cancer support group at Gilda's Club. A couple members of the group came out for the BRICKS booklet release party, and Im looking forward to reconnecting with them! Gilda's Club offers free support services to people living with cancer and their loved ones, and holds a young adult group meeting two Tuesdays a month from 6:30-8pm. All are welcome, but you must attend a new member orientation before coming to the group meeting. See the contact info listed below for more information on how to get involved!

Gilda's Club Western Pa
www.gildasclubwesternpa.org
2816 Smallman Street
Pittsburgh, PA 15222-4722
(412) 338-1919

Sunday, March 7, 2010

T-Minus 6 days, or Why Im Lopping Off My Locks in the Name of Cancer

As many of you know, the amazing lads of the Tartan Devils Football Club are sponsoring a benefit event for BRICKS on Saturday March 13th, in cooperation with Pipers Pub on the Southside. The banding together of locals fills me with an amazing sense of community that Im very proud to be a part of, and there is a clear sense of solidarity with our brothers and sisters diagnosed with cancer in the act of shaving ones head. What at first seemed like a simple and fun event has really made me consider my surprisingly deeper thoughts on the idea.

Its obvious that all of us participating in this event recognize that we have the OPTION of losing our hair, something our cancer affected peers do not always get to chose. Ive never really been one to be so full of self esteem regarding my physical appearance that making a change to my hair would be a big decision, I didnt have a whole lot of vanity to put aside, I suppose. But I have realized that I hide behind my hair, its my cover, a shield. Could I really have the confidence to go from this:



to something like this?:




When I start to have doubts, I think about how cancer affected my husband's appearance time and time again, especially in the last couple of weeks of his life. He lost weight, his skin was dry and yellowed, he let his hair and beard grow wildly before the chemo could take them from him. He took self portraits in the bathroom mirror and when I recently stumbled accidentally upon them on the laptop I was taken aback by the old, haggard man looking back at me. I remember that after he took those pictures he shaved his hair and beard, making a decision about his appearance before chemo could make it for him, returning to the familiar scruff and stubble of his healthier days.

Cancer leaves you exposed and vulnerable, open to constant poking and prodding and probing. Medications, procedures and illness itself can alter your physical appearance in innumerable ways. People handle this with great variety- some in anger, others with quiet acceptance. Some with scarves, wigs, tattoos, clothing. Regardless of the method, there is coping that happens, because it has to. You adjust, do your best to feel whole and like yourself, and you carry on. Sometimes acceptance never comes.

For me, should I remain as healthy and fortunate as I am now, this haircutting shouldnt be a big deal. My hair will grow back, if I allow it to. I have the opportunity to raise awareness about young adult cancer, raise some money for BRICKS, and have an amazingly fun time with new and old friends. No doubt I will stumble into the bathroom the morning of Sunday the 14th, and be shocked by what I see in the mirror, but hopefully I will do less hiding, and go out into the world more confident for having gone through with it.

My love and respect for those organizing and participating in this event grows as it approaches, and I hope through doing this they realize how important this event is to me. For my friends and loved ones who have been on the other side, who have experienced the involuntary loss of their hair due to cancer, Im doing this for you, in honor of your strength and courage. This is about so much more than just a haircut.

Friday, February 12, 2010

More Guest Blogging

Just a quick note today to let everyone know that a recent blog post of mine has been reposted on another cancer resource blog, Being Cancer. The part he wrote about me/BRICKS is a little off, and I'll be in touch about that, but its a really nice honor to have someone else find what you've written to be worthy of reposting.

Theres a lot of info on Being Cancer, so be sure to spend some time there checking it out!

Saturday, January 2, 2010

What you can do to help BRICKS for Young Adults have an awesome 2010




- Tell a friend about BRICKS. You never know who may have been affected by Young Adult Cancer.

- Share your story. If youre a young adult cancer survivor or patient, consider contributing your story to our cancer awareness booklet and resource guide, scheduled for release in March 2010.

- Come to an event. BRICKS has a lot of amazing stuff lined up for next year, be sure to check this blog or our facebook page often for updates.

- Visit the blog. BRICKSpgh.blogspot.com has been the place for listing resources and sharing stories as I journey through my first year as a young adult cancer widow.

- Consider making a donation. BRICKS appreciates every penny people have contributed to our start up this year.

- STAY HEALTHY. Nearly 70,000 young adults are diagnosed with cancer each year- talk to your doctor, know your body, and take care of yourself.


2009 has been a pretty rough year, lets look forward to doing good work and having much success in 2010. Bigger and better things are on the horizon, none of which would be possible without each and every one of you.

Friday, December 4, 2009

Come to a show tonight



At the Mr Roboto Project
702 Wood St Wilkinsburg, PA 15221
7pm
$5

with:
Onodrim
Birds & Wires
Blood Red

I will be there tabling about BRICKS and generally looking to talk people's ears off about YA cancer. Say hello. Hear amazing bands. Its a win/win situation!

Saturday, November 14, 2009

The Frantic Heart of It benefit for BRICKS



Please join BRICKS next Saturday, November 21st for a benefit show hosted by local band The Frantic Heart of It. This is no ordinary cd release or benefit show- it goes so far beyond that.

On March 17th, my husband Rick passed away from Hodgkin's Lymphoma. On that very same day, another young adult in our little punk rock community was diagnosed with leukemia. I will never forget sitting on my living room couch that day, my good friend standing in the kitchen taking a phone call. His hand went to his face at the news he was hearing. Doug had cancer. Rick died not 12 hours earlier from the same evil disease. Could this really be happening? How much could we all take?

At the time I only peripherally knew Doug through other friends, I dont even know that we had ever met "in real life". But that day he became my brother, walking down the same road I'd been traveling for so long. Cancer was not something that was going to be out of my life after my husband died. It reaffirmed my desire to do something with everything I had learned.

I've kept up with Doug and his beautiful family, and now some 8 months after his diagnosis his band is putting out their long awaited cd. This show will be a celebration of so many things, and I hope as many of you as possible will be able to join us. I'll be there armed with all sorts of materials and free information for people. Bring your dollars and buy the band's cd. Buy them a round of drinks. Celebrate being alive.



The Frantic Heart of It cd release show
with special guests
Everything is Ruined
Playoff Beard

at Gooski's in Polish Hill
3117 Brereton St, Pgh
Saturday, November 21, 2009
9pm, 21+, $5

Monday, August 10, 2009

A logo!



Im so excited (and really nervous!!) about how quickly things are moving here at BRICKS headquarters. It is with great joy and enthusiasm that I present our wonderful logo to the world!

Many thanks to board member Jeremy H. for making the logo, as well as a really great informational handbill that I hope to make available for download in the near future.

Ok- its back to grant writing for me. More soon!!

Monday, July 13, 2009

BRICKS is on MySpace!



Just in case you needed one more way to keep up with us, I added a MySpace page for BRICKS for Young Adults. Come on, be our friend. Click here to add us!